Here and there, on this web site, I've included the actual correspondence, back and forth, between me, Karl Loren, and some person who originally wrote to me with some question. When I responded to that question, often with my own questions, I often then received further correspondence. In some cases the dialogue may have gone on for many, many messages. When I quote one of these dialogues I edit out the actual name and any words that might serve to identify the other person -- but the words are absolutely true and accurate. I find these dialogues to be very helpful to me -- in understanding what people are doing in regard to health, and how I can better understand their situations. I hope you will find this instructive, too.
This dialogue, like most on my web sites, shows MY comments in BLUE while the other person's words are in black
Dear Karl,
I can not believe how easy it was to find out this information you provided
regarding Epilepsy.
I came acrose your website by using ask.com. I then plugged in the word
epilepsy and found it! I found your website very informative perhaps too
much because I am extremely scared right now.
I am a 28 year old female who just had a baby 4 weeks ago who was told two days
ago that I had a seizure. My husband witnessed this seizure. I do
not recall any part of it. I came out of it to find a police officer and
EMT in my bedroom. I was taken to the emergency room where they took a
bunch of blood work (all was normal) and a head ct (normal) and discharged a
couple of hours later. I then made an appointment with my primary doctor
and a neurologist. The neurologist did a series of tests (hand eye
coordination tests) and everything was fine. He told me I need to go for
an MRI and a EEG - so I am waiting for an appointment. In the meanwhile,
he prescribed DILANTIN. I know you are not a fan of the drug. I
wanted to do some research to know what I am putting in my body. The
doctor has instructed me to take this pill 3 times a day (100 MG).
However, the first day he told me to take 10 PILLS! Then begin to take
three a day. I am on my second day now. I feel light headed and am
extremely concerned because I have a 4 week old infant to take care of.
Just 4 weeks ago I was the happiest person in the world now I feel like I have
been handed a death sentence.
My question to you is: I know you are against this drug.
Could you please give me your opion on the dosage prescribed to me? Is
three a day a lot?
Can this drug cause liver damage?
The doctor told me I would need to be on this for two years. I was reading
some comments above where people indicated they needed to be on this for 20
years?
Is this drug like a catch 22? Helps with one thing and creates other
problems? I am so upset I do not know what to do.
I started getting these "epsidodes" about a year and half ago. I
never had a seizure like this past one. My husband told me that he woke to
the bed shaking. I was falling out of the bed, my body was stiff and my
eyes were open but I was unconscious and blue. He also told me I tried to
bite his are. The next day my jaw was hurting real bad. Prior to this
episode for the past year and half I would have these "zoning" out
episodes. I would be in this complete daze for a minute or two.
(nobody could tell). I would realize what was happening. I never did
anything about this because I did not want anyone to think I was crazy. I
also did not know to explain it. The doctors are telling me that these
were mild seizures I was having.
I find the timing strange in all of this. My husband and I moved into our
house a year and half ago. We have power lines (LIPA) leaning in the
direction of our house. Could this have caused it? Could this make
it worse? I will sell my house tomorrow if that means I can
have a normal live. My mom (adopted mom)passed away a year and half ago
(she battled lung cancer). Could this possibly be emotional?
I would greatly appreciate a response.
Sincerely,
Mary
Karl Loren
-----Original Message-----
From: @aol.com]
Sent: Friday, February 16, 2001 5:16 AM
To: karl@karlloren.com
Subject: Re: Message For Vibrant Life From The Home Section
Dear Karl,
Thank you so much for responding so quickly. I really do appreciate it.
I
feel like nobody understands how I feel. Why should I just put these pills
into my body without knowing what it is. My husband thinks I should take
the
medicine. He keeps saying that he never wants to see me like that
again.
It was very scary for him. My husband is also concerned that this
could of
happened while I was home alone with our baby. I understand these
points. I
am going to get another opinion.
I did not go for MRI or EEG yet. I am hoping to go sometime next week.
I
asked my doctor if these tests could come back normal? He replied
"yes". I
then asked what happens next? He said you still stay on the dilantin.
Is
the doctor then assuming it was a seizure and that I have epilepsy? Is
there
a test out there that can tell me for sure what happened? Or is it process
of
elimination?
I did have a head CT while I was in the hospital - this was normal - Would
this have shown something? The hospital also did blood work:
NA,CI,K,CO2,GLUCOSE,BUN LFT'S, URIC ACID. I was told this was all fine.
I
have no idea what it means. Should this have shown something?
I am extremely nervous to take this medicine. My diet now that the baby is
here is not so great (I really watched while I was pregnant). I had given
up
caffeine for 9 months and had a good breakfast everyday.
Now that I have a baby and no time, I tend to skip breakfast - have a cup of
coffee with CAFFEINE and have my first meal around 1 or 2 in the afternoon.
I eat whatever I can find ( soup, french fries, something frozen, left
overs
from the night before) . For dinner, I always have a meat, veggie and a
starch. I eat red meats, pork, chicken, pastas.
I am probably about 20 pounds overweight (not due to the baby) I was
overweight before I got pregnant. I lost the pregnancy weight already.
NO I AM NOT BREASTFEEDING!. My baby is very healthy and doing wonderful!
I wanted to ask you your opinion on two items: Could labor/giving birth
have
had anything to do with this? I was talking to someone yesterday.
Same
thing happened after she gave birth. I gave birth 4 weeks ago.
Could being extremely tired have had anything to do with this? I have been
exhausted since the baby was born. In the past, I required a lot of sleep
(
8 -10 hours each night). I am lucky if I get 3-4.
Thank you very much for your help and support.
Sincerely,
Mary
Dear Mary,
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